Five months after undergoing an operation that risked paralysis, a 29-year-old will complete a 77-mile charity bike ride to help those less fortunate.
Sam Rose, of Bury St Edmunds, was diagnosed with a neurofibroma tumour in October last year.
In March she underwent an operation to remove the tumour and on September 29 she will bike from Cambridge to Norwich to help others suffering from the condition.
Sam was particularly struck by the difficulties young children and their parents affected by the condition would face.
She said: “After coming out of surgery and experiencing a smaller part of what those parents suffer it’s made me want to raise awareness and funds to support these people and their families.
“It affects so much because it causes disabilities. It’s completely debilitating.”
Neurofibromatosis affects 25,000 people in the UK.
There is no cure for the condition that can affect the sight and cause tumours to grow on the spine and brain.
Before the growth of a tumour on her right leg Sam was a keen runner.
The tumour prevented her from running and left her in ‘excruciating pain’ using a cane.
Despite this, with the help of her friends, Sam did not lose her sense of humour and they celebrated her 29th birthday dressed up as fellow cane user Charlie Chaplin.
In March she underwent surgery to remove the tumour.
It was a risky operation.
The tumour had grown on one of the main nerves in the leg and a wrong move could have resulted in paralysis.
However, as she came round Sam felt the surgeons tickling her feet and embarked on her recovery with steely determination under the watchful, caring eyes of her mum.
Sam, who works as a senior buyer for Aspall, is no longer allowed to run so her surgeon suggested she try cycling.
She said: “I absolutely love it. I thought ‘this is it, this is what I will do to start raising awareness’. This is the beginning of my campaign.”
“This is really challenging for me but because I’m grateful to have the chance I want to push my body.”
Sam hopes her efforts will also encourage more women to take up cycling.
She said: “It’s fun, it’s challenging but so much fun.”
To sponsor Sam go to her just giving page www.justgiving.com/Samantha-Rose-Suffolk