‘Overwhelming’ response to appeal for Kelsie, 3

Cheryl Pastfield with her 3-year-old daughter Kelsie and mum and Nanny Anita Taylor.
Kelsie is disabled and has a very rare condition. Her family have raised more than �1,000 to buy her a special bed with help from the community.
Picture Mark Westley ANL-160604-171021009
Cheryl Pastfield with her 3-year-old daughter Kelsie and mum and Nanny Anita Taylor. Kelsie is disabled and has a very rare condition. Her family have raised more than �1,000 to buy her a special bed with help from the community. Picture Mark Westley ANL-160604-171021009
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The family of a toddler with a rare debilitating condition say they have been touched by the kindness of others following an appeal to raise money for a special bed.

Cheryl and James Pastfield from St Edmunds Road in Stowmarket have been trying to find the funds to buy a custom made bed for their three-year-old daughter Kelsie, who has ARID1B Coffin Siris Syndrome.

Little is known about the illness, which causes developmental delay, and less than 200 people have been diagnosed across the world.

To buy the £1,000 bed the couple have organised a darts tournament and raffle at the Royal William pub, in Union Street, but after word spread and Cheryl set up a fundraising page twice that figure has already been donated.

“It is fantastic what has happened,” said Cheryl, 27.

“We have raised around £2,000 and it is overwhelming as we never thought we could raise that much.

“Ninety per cent of those who have donated are people we don’t know and it is amazing there are people out there who just want to help.”

It is hoped the special padded bed, which has high sides, will help Kelsie enjoy a safe night’s sleep.

Money left over will be put towards creating a sensory garden and future equipment for Kelsie, who is unable to walk, talk and is fed through a tube to her stomach.

“She is totally reliant on us and communicates in her own way, which you have to figure out,” said Cheryl.

“Nobody knows, not even the doctors, what the future holds but Kelsie is a smiley, happy little girl and takes it all in her stride.”

The darts event is to be held from 1.30pm on May 29, with the raffle and its first prize of a week in Majorca, drawn the same day.

To donate prizes or buy tickets go to www.bit.ly/HelpKelsie. You can also donate at www.gofundme.com/KelsiePastfield.