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Bury St Edmunds concert staged in honour of girl with rare genetic disease

Singing group The Edmund Octet teamed up with soloists from Opera & More to hold a cabaret night at Bury's Unitarian Meeting House on April 25. Pictured at front from left Marcel Rousseau presenting a cheque to Sylvia Wilson with John Meeks, Ed Bacon, Gill Garside and Ed Wilson

Singing group The Edmund Octet teamed up with soloists from Opera & More to hold a cabaret night at Bury's Unitarian Meeting House on April 25. Pictured at front from left Marcel Rousseau presenting a cheque to Sylvia Wilson with John Meeks, Ed Bacon, Gill Garside and Ed Wilson

A sick three-year-old girl has had a concert staged in her honour after a Bury St Edmunds choir felt compelled ‘to do something’ to help.

The Edmund Octet’s recent performance at The Unitarian Meeting House was held on behalf of member Edwin Wilson’s granddaughter, Nora, who has Glycogen Storage Disease (GSD). It raised £1,000 for the AGSD-UK charity.

Mr Wilson, of Elmswell, who sings in the Octet’s top tenor section, said his son, Huw, and wife, Marita, were told ‘they had more chance of winning the national lottery than having a child with GSD’.

He said: “Nora’s condition was first spotted by her GP during her routine 12 month check up, although it took a further eight months of tests, including muscle and liver biopsies, before it was confirmed she had Type 3 GSD.

“She has an enlarged liver and this prevents her lungs functioning properly because they cannot expand fully.”

Marcel Rousseau, Octet founder, chairman and top tenor, said: “We are humbly pleased to have had tremendous support from our regular supporters and the general public who enabled us to raise the magnificent sum to give to the Trust which is seeking a cure for this insidious condition.”

To find out more about the charity, visit www.agsd.org.uk/

 

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