MADI Balaam is just one of the extraordinary children to benefit from the care and support of East Anglia’s Children’s Hospices (Each).
The 13-year-old lives in Ingham with her parents Sharon and Adrian, sister Connie, two, and brothers Toby, 18, and Noah, four.
She has a catalogue of illnesses, having been diagnosed with Noonan’s Syndrome, epilepsy, Attention Deficit Hyperactivity Disorder, Oppositional Defiant Disorder, Autistic Spectrum Disorder and two heart conditions.
She has also bravely fought pneumonia, a collapsed lung, two heart attacks, septicaemia and MRSA
For the past 10 years she and her family have received ‘invaluable’ support from Each at the hospice in Milton, Cambridgeshire, receiving short-breaks and overnight care, as well as music therapy, hydrotherapy, trips organised by care staff and sibling support.
Sharon said: “We wouldn’t be a family without Each. I can’t even begin to imagine what life would be like without them. Madi faces many challenges and needs constant care and attention, and only myself, my husband and Each nurses can really care for her.”